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Federal Service for Health Control: Medicines in the Programme “Seven Nosologies” are provided regardless of patients’ having disabilities and keeping rights for benefits September 12, 2008 Some time ago, we told our readers of the paradox with regard to providing Russian PwMS with drugs which modulate the course of their disease. On the one hand, the medical profession claims PwMS start modulating treatment as soon as possible, i.e. shortly after their diagnosis, but on the other hand, Russian PwMS were able to start the therapy no sooner than their first disabilities came up and were confirmed. Thus, the preventive power of the drugs, which is especially valuable in MS, was formally cut off. However, this has been eliminated. This year, PwMS and those suffering from the other six nosologies, identified as severe and rare and highly expensive for management, can receive an adequate treatment right away after they are diagnosed without awaiting their disabilities development. To get rid of any ambiguity in this vital issue, Elena Telnova, Deputy Head of the Federal Service for Health Control in the RF (ROSZDRAVNADZOR) explained the procedure of provision of pharmaceuticals in the Programme of providing patients with rare chronic diseases (“Seven Nosologies”) with high-priced medicines. The explication was given in reply to the request of the All-Russian Society of people with hemophilia. In particular, the letter reads: “According to Article 56.2 of the Federal Law #238-FZ of December 19, 2006, purchases of pharmaceuticals to treat hemophilia, mucoviscidosis, pituitary nanism, Gaucher's disease, myeloleukemia, multiple sclerosis, as well as conditions after organ/tissue transplantations are carried out in accordance with the data in the Federal registers for patients with the above-mentioned nosologies. Centrally purchased pharmaceuticals shall be provided to patients regardless of whether they have their disabilities formally confirmed, as well as to patients who have refused the state social assistance in the form of social services for 2008… Therefore, centrally purchased pharmaceuticals may be released to patients included in the Federal registers on the mentioned nosologies regardless of whether they keep their right to get the state social assistance in 2008.” (Translator’s note: before, all medicines, those for MS included, were released to patients for free only on the condition of their keeping this right to get the state social assistance, which reduced their disability benefits) (AMI-TASS)
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